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Our appointment with Dr. Woo is next Tuesday, November 18th and our appointment at Shriners in Tampa is December 18th. Part of me is looking forward to finding out exactly what the situation is with his right leg and foot, but a bigger part of me is scared to death. I am praying that everything from the knee up looks completely normal and won't require any surgery. To be honest, I am also praying for a miracle. Sometimes I think about how amazing it would be if the doctors told us that he would just need a small surgery on his ankle and then he'll be fine, but I know that is not a likely outcome.
I guess the hardest part is knowing that starting next Tuesday we really have to start dealing with this. Starting next Tuesday, my baby really does have FH. Don't get me wrong, ever since we found out I have never not thought about it. Its just that since he has been born, I have had my mind on so many other things and haven't devoted much thought to Eli's FH. Even though I see that his right foot is smaller, that he only has four beautiful toes on that foot, and that the foot turns in, to me he is just so perfect.
I think what I am really dreading is ultimately getting a date for his surgery. From that point on there will be my life before my baby had to have his leg amputated and my life afterward. Its hard to imagine how I will get through all this. Luckily, I have a beautiful, healthy, baby boy that will be my inspiration.
It is scary. I am going to call this weekend:)
ReplyDeleteKristina, tu bebe es perfecto y no dejes que nadie te diga lo contrario. Las diferencias nunca han sido malas, son solo eso, diferencias y son esas diferencias las que hacen del mundo un lugar hermoso.
ReplyDeleteTu vida y la de Jeredsito va a ser la mejor, se que tienes miedo, y también el miedo es parte de la vida y a tu alrededor hay gente que te dará su apoyo. Disfruta los momentos y no dejes que esos miedos te prevengan de vivirlos al máximo. Te quiero
Saludos amiga
Oh Kristina, it is scary but you know what, you do get through, I never thought I would but somehow you just do. Eli is so gorgeous and he is healthy in every other way, but I know that it doesn't make it any easier. I just wish we could be near you all so we could all sit down for a cup of tea and a good talk!! I know I cried for the first four years of Paddy's life I found it very difficult. Since the operation I have been fine, I think the waiting and not knowing is the worse bit, and once you take some action things settle down. Keep us posted Kristina, you are in our thoughts.
ReplyDeleteHI! Just popping by......congrats on your sweet little boy!!! He is BEAUTIFUL!!!
ReplyDeleteI know that scary awaiting appointment feeling...my little Chloe faces surgery on Dec 1st, after getting postponed from the 17th of this month because of illness. Hang in there......enjoy those wonderful smiles and twinkly eyes....I pray you will have strength and grace in the time you need it!